Sunday, July 8, 2012

Lupus...????


After reading a few posts this weekend on a support group I am on,  I had a memory jog. A few years back I had a second trimester loss. They did lots of tests to see if they could figure out why. Anyway, one of those tests showed I had something in my blood that had to do with Lupus. I think it was ana or some like that. So I was sent to a rheum doc. He said no and dx me with fibro. Ok.... fast forward to the last couple of years. Now I am having all these GI issues. So I looked up Lupus tonight....um....  wow!

So many things on there are me. Over the last few years I have developed many different health issues.
- Extreme Anemia is one. They can't find a cause... hmmm
-Fatigue, which we always chopped up to the iron issue. It may be....but could it be Lupus?
-I have always had great skin. Recently it seems so rough and flaky..I can't explain it.
-Headaches all the time. I can't seem to find a reason for them either. It just  happens out of the blue.
-Joint pains....constantly. I always do. That was one issue when I went in. He said since I wasn't "swollen" then most likely not. I tols him I was always puffy in the am and in the evenings.
-A strange thing I noticed and was actually going to mention to my family doc this week...fever. I seem to often have a temp between 99.8 and 100. I mean daily for a bit now. I keep waiting to get really sick and nothing. Seems strange. Then the next day I can take it and it's back to normal range, but then in the evening back to higher...or even the next am. Strange.
-Hands and feet swell daily.

These are just a few of the things I noticed about the list I was reading. Another thing is the depression. So, now something else to  mention to the doctor when I go to Boston. Maybe it wasn't advanced enough at that time to dx me. I just don't know. But to now be having the GI issues I am with "cause." Not to mention my exhaustion. Lots to think on here. Am I now thinking I have Lupus and jumping to conclusions..no. Just something to think on and mention to my doctor.

You have to understand that I am having all these health issues and I am only a 33 (almost) yr old woman. I don't smoke, drink, or eat just junk food. I have been a pretty healthy eater for a long time. We don't do a lot of processed stuff and I make most if not all my meals from scratch. We even ate gluten free for 5 yrs and we ate organic and natural for years as well. (cant afford it now) I also take my vitamins and suppliments. So I look at all that and while I am overweight I am not grossly obese. So I need to lose weight, yes, but it can't be the cause of all my issues. So I am searching. I am being my own advocate. If I don't research and have questions I won't find answers. Also if it is Lupus it would make sense. My mom has RA. So it is possible those genes were passed down in the form of Lupus, yes that is possible. Again, not saying that is it, just wondering.

I have an appt with my primary doc this week and then the Boston doc next week. I talked to my doc this last week about some issues that she felt she wanted to see me about. Some are the issues I listed above and some are other things. I am sure she will be interested in this as well.

Thank you for your prayers. I have actually been able to eat a little more solids. Although I think I have over done it and am now paying for it. I am hurting pretty bad and my stomach burns, but with these issurs you have to take the chance and see how you respond to them. I told hubby tonight "I am done with food. Why do I bother?" But I know I will feel differently tomorrow. LOL

Again, God is good!! HE is always good!!! He will and does sustain me. He will and does give me strength and grace. I am thankful for my salvation and pray that I can love according to his precious Book!!

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