First of all he was very apologetic for making me wait so long. He wanted to call Sunday but just wasn't able too. He has a family also. Then Monday he was literally in surgery and other procedures all day until late. He wanted to call earlier today but wanted to be able to have an hour to chat with me. Made sense to me.
Ok, so the Barium swallow showed what we know.
Hiatal hernia, still small not huge but will need surgery at some point.
Extreme Reflux! Worse than what doc was hoping for.
So what's wrong? Not sure. Is this all just due to reflux. Possible, but he doesn't think that is the only issue. Could it be Gastroparesis, possible, but I don't have an issue with emptying from what we know. GP is when the stomach doesn't empty fast enough so you have to take digestive enzymes to help it work correctly.That is one thing he wants the Boston doctor to look into. Could it be the hiatal hernia? Yes, that mixed with the reflux could be the cause of the pain. If this is the only issue I can get the surgery to help. He wants to make sure though, before doing it. Then the other thing could be the one they can't see...Esophageal Motility Disorder. I have come in contact with a few other ladies that have this and they went through everything I have been through so far and all tests looked normal and yet they still have food stuck. So it is again....a waiting game.
At this point none of the tests showed any issue for food to get stuck anywhere. But..he believes me! LOL He truly sees that there is an issue and wants a second opinion from a doctor in Boston. He wants to do the surgery but he is afraid right now that it will make my esophageal issues worse. For some reason he has a pretty healthy 32 yr old who can't eat. That doesn't sit well with him. What exactly does that mean "Can't eat?"
When I eat solids except for crackers or something easily crushable
-I get full VERY fast
-After a couple bites, literally a couple, I feel it sitting in my chest and I start getting pain through my chest
- I regurgitate often, even with crackers and such.
- I literally hurt from mid chest down through my stomach
- I have lost 20 lbs so far, in just 1 month
For now he wants me to remain mostly on liquids and have those all through the day. So no three meals a day for me. I must eat a little here and there all day long. No raw veggies. Anything that could cause acid is a NO NO. As for solids, try some here and there although he wants me to stay away from what I know bothers me. I can not handle meat, even if it is chopped real little. I can do some shredded meats that are over cooked in soups. Like the chicken in cream of chicken. He wants me to try another medicine to see if it will help the reflux. If it works then he will get me a script for it. If not then he will bug my insurance company himself and get me the medicine I need. So that's a good thing.
So I wanted to know what the difference is between him and one of the Boston doctors. I guess the difference is that he sees patients for small issues. The Boston guys see problem patients. They see things like this often. I may get down there and they see the test results and look at me and they say "Yep, seen this before. This is......"
Another thought we had had was maybe it is a Gluten Intolerance. BUT...that just doesn't make sense. He does wonder if that may be part of my problem as far as the Iron deficiency is concerned. That may be an avenue to explore later.
I do ask for your prayers as I am exhausted. Obviously I am not getting the nutrition I need. Yes I am a big lady and need to lose some weight but not eating is NOT the way to do this. My iron is very low and I can't take my vitamins so that is really causing me issues. Prayerfully I can get the money together to order some liquid vitamins. Also prayers that we either find the answer or ...well....that the LORD will just give us and the doctors wisdom. Oh, and my doctor put in a special order to the docs in Boston that this is a rush need. I need to be seen ASAP! Usually you end up on a 2 to 3 month waiting list. He personally wrote a letter to the doctor he wants me to see explaining my issues and that he wants me to be taken care of quickly. He also explained that I am a very busy momma with 6 kiddos. That was a plus! LOL
Sorry so long, but I wanted to try to answer all the questions I could think of. If you want to know anything else, please ask!
Thank you sooooooo much for your prayers!!
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