Today's appts and thoughts

Today I go for a colonoscopy and the appointment with the Rhuematologist. The prep for the colonoscopy is not easy on my stomach. My hubby and I were afraid I was going to throw it up. It seemed to take a long time to get cleaned out. Hopefully all will go well.

My doctor suggested I make a list of every ailment I can to show the Rhuemy today. After I made the list I just sat there and stared....really? That much. No not every single day, but 75 % of the time I feel most of those things. On "feel good" days I only expereince some of the problems. So I figured just in case anyone was interested I would list them here, also in case I lose my paper! LOL

Daily headache
Fevers between 99.2 and 100.7 frequently. 5 days out of 7
Pains:

• Base of skull/neck
• shoulders
• elbows
• wrists
• collar bone
• hips
• knees
• feet
• Muscle pains in arms and legs with weakness

Loss of strength in arms, legs, hands, and feet

Cold hands

Insomnia

Exhaustion

Skin on arms feels rough and bumpy

Get pink patchy areas on arms and cheeks after being in sun

Scalp is senstive, can't wear hair up for long periods of time.

Skin is sensetive, don't like to be touched or rubbed often

Eye twitches seem worse

Severe Anemia with no found cause yet

Pains in my hands with numbness and loss of strength

Skin will feel dry and scaley often

Get small bumps or lines of bumps that are itchy and painful

My eyes are irritated frequently. My right eye gets really sore and red. I also noticed they are very dry often.

Can't stand or sit for long periods of time without pain in hips.

Getting up and walking in mornings or after sitting is painful for the first few steps, sometime hour.

Chest pain daily. Right in the center. Deep breaths hurt.

Extremely forgetful often

Dizziness

Ringing in ears often

Carpel Tunnel in wrists

Vision seems to be go strange. Get blurred vision often. Especially when I look up from what I am doing.

Skin around my eyes seems different. little flaps of extra skin, rough, dry, dark

My tongue and throat are often sore. My tongue will swell and get these sores on it, but not like cold sores.

My throat is often swollen and sore, esp on left side.

Now add in the GI issues

Feel full after small amount of food

Nauseous daily

Weight loss

Constipation when it used to be 3 to 4 times a day!

Bloated 24/7

Regurritate often

Hiatal hernia

Major reflux on two fidderent meds for this

Sometimes feel food is stuck in esophagus

Lots of belching

Just an over all loss of appetite

WOW................... Really?! Yes, really. All of this is exactly what I expericne on a day to day basis. Well you don't look as sick as all that. I know. I am a Mom with 6 kids and life that must go on. Somedays are harder than others. Things aren't getting done at home that I want to get done. You will see me limp from time to time, but really who wants to see someone walking around looking like they are feeling all those things listed above. I mean I wouldn't. I seem to be having a good span the past week. I have really bad days, but not all the time. Praise the LORD for that.  Am I dying? No. But this is a life altering sickness that I must learn to deal with. What ever it is.....

Please pray for some answers today.

Thank you!!